MRSA Superbug Forum

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Re: 6 months of MRSA
Reply #40 by Paul
Posted: November 30, 2006 at 18:43
"...inserting an intravenous drip on a patient infected with MRSA, then without washing your hands moving to the next patient to carry out a similar procedure, and the next and so on" You're right this is exactly the way infections are transmitted. If you see this happen again say something.

S. aureus is a known human commensal, colonising, amongst other loci, the anterior nares of the nose (hence the reason many MRSA carriers are prescribed nasal mupirocin (Bactroban)). To date I have seen no evidence that MRSA will survive any significant length of time on surfaces such as floors. Even if it does, the bacteria will have to get from the floor to your wound, they are non-motile and are not spread as aerosols... so this must be by hands (or other physical contact) - hence wash your hands.
Re: 6 months of MRSA
Reply #41 by Nigel
Posted: December 2, 2006 at 15:11
I was diagnosed MRSA Positive following surgery to remove my great toe in 2003, the colonies being present in all areas swabbed. I was promised follow-up treatment to eradicate the infection, but despite many requests at various out-patient clinics, nothing has been done to eradicate it.

Fortunately, I have not had any serious consequences up until now, apart from a persistant ulcer on my foot which has refused to heal and continues to exudate. However, over the past few days, I have developed a serious infection in that site, with consequent heating, swelling blistering and exudation. Being a Type 1 Diabetic, and already having had a previous amputation, together with severe neuropathy in both feet the prognosis does not look good. The consultant wants me to self-admit myself to hospital for intra-venous administration of an anti-biotic cocktail as the colony is already resistant to the maximum oral dosages of Clindamycin, Metranidazole and flucloxacillin, thanks to the previous regimen of oral anti-biotics administered in an attempt to provide a "background" resistance to infection - an approach I would seriously question the validity of.

The prognosis is not good. Owing to the depth of infection, there is a 75% chance of amputation of two toes, and as this would leave the two smaller toes in an unsupported state, and prone to further damage, the amputation would be at the second meta-tarsal joint. If there is the slightest indication that this tissue is also infected, then I would have to lose the whole foot, and as I would need a firm basis for a prosthetic foot, the amputation would then be performed six inches below the knee, allowing plenty of muscle tissue to pad the bone stump so that the socket of a prosthetic foot would have something to support it.

I was told this less than 24 hours ago, and am still coming to terms with the implications. Before my previous amputation, I had endured four years of pain from an undiagnosed (insofar as the causal organinsm was unidentified) infection, which entailed several stays in hospital for Intra-venous anti-biotics - none of which treatments worked successfully - the only successful outcome was the amputation.

I often wondered whether the original infection was caused by an MRSA type bug, and if so, why it was not diagnosed earlier. I am of the opinion that trhe local NHS trust was employing the ostrich syndrome of "if we dont test for it, then we have a record of 100% of patients not having MRSA" It is surprising to note that since 2003, the incidence of MRSA infections in our local NHS trust hospital has risen from some 50 cases a year to well over 1000. This is despite an awareness programme being put into place.

It is encouraging to note that, since 2003, and my last prolonged stay in hospital, when I was in isolation owing to the MRSA infection, (and I had to ask Doctors, Consultants, Visitors, Nursing and Domestic Staff to wash their hands BEFORE and AFTER touching me, my bedding or wounds) that the policy of hand washes are actively promoted, and bottles of hand wash are at the entrance to each ward, bay and on each bed, and I am glad to say, is largely observed by the hospital staff, although the patients and visitors pay scant regard to the rules.

I will keep an eye on the latest developments in persuing a claim using the Health and Safety at Work Act, and COSHH Regulations. Financially, I could not afford to lose such an action against the NHS, but look forward to the day when we have some case law, so that a collective claim could be entered. In an ideal world, the NHS would just put their hands up and say "OK, its our fault, and we own up". Must go - I have to shoot down some flying pigs before they dirty the washing.

All the best

Re: 6 months of MRSA
Reply #42 by Amy
Posted: December 26, 2006 at 03:57
Whoever posted the previous comment is a moron and should be blocked from this website.
Re: 6 months of MRSA
Reply #43 by linda mccafferty
Posted: December 26, 2006 at 18:23
Amy.........thats not very nice as ,for being blocked from the website it is YOU who should be blocked for your insult.
Bleach bath prevention
Reply #44 by Linda
Posted: January 22, 2008 at 04:21
Has anyone used a bleach bath for prevention? One cup per large tub of water has been prescribed to get rid of recurrent infections to protect from infection at future surgery.
I wonder if it promotes UTI which seemed to occur right after two baths.
Re: 6 months of MRSA
Reply #45 by copado
Posted: July 28, 2008 at 07:26
although this is an old thread, I think it's an important one. my symptoms have shown up very very similar to Petrus's here.
One thing I would add, and I'm Not a doctor, is that the "lots of spider bites" scenario is not a recurrence of a colonized case of ca-mrsa. But is a new introduction to it.
That's what I think. I had mrsa and remember that when I first got it, it showed up like 20 spider bites on the back of my leg. It then took the docs quite some time to finally diagnose it. but when they did i believe i ridded myself of it.
Then, I went and put my wetsuit on which was probably full of the stuff after quite some time from using it and bingo, the following day I had the spider-bites scenario again.
Just my .02 cents.
Before that my recurrences just showed up as the little infected follicales here and there around my 'underpants area'- waste line, inner and outer thighs, buttocks.

Re: 6 months of MRSA
Reply #46 by Shannon
Posted: July 30, 2008 at 15:19
I totally agree with you Ruth "But what is the point of testing if the level can be so low as to be undetectable by the test?" If you have had MRSA you should be considered virulent, no need for the test if at some point of your life you were infected with this bacteria. You should just be treated as though you have a active infection to prevent outbreaks. You should be isolated, for sure.
Re: 6 months of MRSA
Reply #47 by JBlue
Posted: September 15, 2008 at 05:50
Hello and good morning! Just wanted to come in and say hi. I'm Jerry. I enjoy cooking, volunteering, doing Paint Shop on the computer. I also like to listen to country, 70's and 80's music. Thanks for letting me join your group!
Re: 6 months of MRSA
Reply #48 by Susan
Posted: September 16, 2008 at 17:06
How interesting to hear all these theory's. My husband was extremely ill back in December 2006, he has been suffering for about 18 months with reaccuring abcesses on all different parts of his body. He had also had a few "bouts" of cellulitus. Normally a fit and healthy 48 year old the hospital were baffled. It came to light that he had "Panton Valentine Lukocidin" positive MRSA quite unusually found in Great Britain. He was treated for 3 weeks on all different types of antibiotics, and has made a full recovery.
We both live in fear of the bug returning as this form of MRSA is life threating.
The only advice I can give is that my husband takes A probiotic drink everyday. Is this keeping the MRSA away?
Re: 6 months of MRSA
Reply #49 by Callie
Posted: September 16, 2008 at 18:41
Hi Susan

The PVL producing strain of MRSA is fairly rare in the UK as you say - I wonder where your husband contracted it? Had he been abroad before he became ill? Are you in the South of the UK? From what I understand of PVL MRSA it causes different symptoms to HA-MRSA but causes similar symptoms to CA-MRSA in the United States of America - boils/abcesses/cellulitis.

The jury seems to be out with regards to probiotics drinks - lots of people swear by them but in actual scientific studies the benefit only seems to be in those who have recently finished taking antibitoics as the probiotics help replace the normal bacteria that live in the body that may have been killed by the antibiotics.

Glad to hear he has fully recovered now.
Re: 6 months of MRSA
Reply #50 by linda mccafferty
Posted: September 17, 2008
I had a phone call recently from a man in Glasgow who had PVL , it seems it is very much in the UK Callie.......... very very frightening this indeed !!!!!
Re: 6 months of MRSA
Reply #51 by Susan
Posted: September 17, 2008 at 08:49
We have no idea where my husband contracted the PVL, although we had been to the USA before the symptoms started. We actually live in Wales and as far as the hospital that treated my husband knows he was the first person in Wales to have PVL.
Re: 6 months of MRSA
Reply #52 by intergerure
Posted: October 31, 2008 at 10:06
Hello, i newbie, anybody can help me?
Re: 6 months of MRSA
Reply #53 by Karen R (USA)
Posted: November 3, 2008 at 05:10
It has been 3 years since the last infection of any proportion has hit my husband. He/I battled it about 2 years. It was standard treatment at first with zyvox at 30 days. This helped initally for about 3 weeks and then the nightmare started it's vicious, painfully debilitating and torture filled routine again. Being aware of the antibiotic cycle and thanks to the internet we used several helpful natural products and stopped antibiotics, and has been symptom free for 3 yrs. To get this far took dillegince and cleanliness (expecially pus)(burn it if possible). Bleach was used at first along with hibiclenz. Please deeply clean and destroy all infected bandages/clothing. We found the following to kick it excellent...
Usnea(herbal tincture)At first itch (max at 7day rest 3 start again if needed)
Wild Mediterainian Oil of Oregano (for serious immune support and anti-bacterial both topically and internally)
Manuka Honey from New Zealand (for dressing/wound packing)
The first sign (of itch/redness/pain/BB feeling pimple), he took Usnea internally at 10-15 drops 3-4x a day plus a drop at sight rubbed in. It will have a feeling of tingling (eating it) from the inside/underneath. Drop back dosage to 2-3x day for day 4-5 then 1-2x day 6-7. rest 3 days(no Usnea) and repete again if necesary.
This along with a regular regime of Oil of Oregano 2-4drops 2-3x day to boost immune has it kicked, generally without going to full boil each time. Put in shotglass of tea or juice to take.It will burn but only a few seconds(worth it)
Generally if the Usnea is taken immediately there is no issue but in case you scratched/tried to pop pimple(implodes it into sinus like cavities)and it goes to a small boil, the manuka honey will need to be packed in to help disintigrate the pus and speed heal the wound.
I am trying to quickly document our sucess so if there is someone looking for a natural cure this is it. Good luck
Re: 6 months of MRSA
Reply #54 by Saskia Brown
Posted: January 23, 2009 at 15:17
I have MRSA and I cant get rid of it I have infected my boyfriend my affair freind and my girl friend and I just slept with my work girlfriend who is married. What should I do?
Re: 6 months of MRSA
Reply #55 by linda mccafferty
Posted: January 23, 2009 at 19:19
Are you in the UK Saskia ?
Re: 6 months of MRSA
Reply #56 by U.S. Canuck
Posted: March 25, 2009 at 23:16
I have had MRSA for over 2 years. Got it at the local VA hospital where they lanced an infected in-grown toe-nail. Got re-infected at the same hospital, where they "planed" a bone in same foot, even though I had warned them that they needed to put greater effort ito sterilizing their facility....for everyone's sake.

The VA never did diagnose the MRSA, even though I eventually lost virtually all the skin from the knees down on both legs and was hospitalized twice more for "staph infections". I finally got a "civilian" doc to refer me to a skin specialist. The cultures the specialist took were definitely identified as MRSA. Since then I have been treated with numerous antibiotics simultaneously [ncluding Rifanpin, tetracycline, doxicycline, minicycline and others (Sp?). The Rifampin caused my tongue to swell and yeast infections to occur at the corners of my mouth. The MRSA itself also resulted in my having to go to a podiatrist every 3 weeks for minor surgery each time to debride an open wound which resulted on the ball of my foot. That wound finally healed, but it took a year and a half.

The skin specialist is very arrogant, and claims that if everyone would take bleach baths (two cups of bleach in half a tub of water, soak for 20 minutes, was his recommendation), MRSA would just go away. I think that is pure ignorance, as he also claims it would stop the spread of AIDS. As I used to work in hospital administration before I retired 18 years ago, I know that is not true with AIDS. At any rate, I can't do the bleach baths. As the skin re-grows on my lower legs, I've been restricted to bathing twice a week, and then immediately have to cover my legs with vaseline and put on support hose.

An infection specialist also prescribed showering from the chin down every day, but with Hibiclens. Using it twice a week instead does seem to help decrease the frequency, and severity of outbreaks, but Hibiclens is expensive in the small bottles usually prescribed. Just FYI, it is available over-the-counter in pints, quarts, and gallons. Cheapest way to get it is to buy the gallon size online and refill whatever size container you use when in the bath, yourself.

If you are not familiar with it, Hibiclens is one brand of cleaner that surgeons use to "scrub up" prior to operating on patients.

Both the dermatologist and the infection specialist have told me independently of each other that I am a "carrier", and therefore will never be clear of MRSA. They tell me that aggressive treatment will result in temporarily "breaking the cycle" of infections (boils, etc.), but that I will be very lucky if I have "clear" periods of even 6 to 8 months, ever.

They also say it is common to have the bacteria on the skin, but most people do not get active infections unless there are other underlying problems, such as immunity diminuation due to age, diabetes, etc.

Please pardon all the typos, I have never worked as a clerk/typist.
Re: 6 months of MRSA
Reply #57 by faith
Posted: August 16, 2009 at 05:01
I have had MRSA for 5 years now. I have had numerous outrbreaks and yet have spread it to any member of my family including my husband. We've learned that stress brings on the outbreaks. My doctor was nice enough to give me a years supply of anti-biotics - bactrin so I wouldn't have to spend money every couple of weeks to see her. After 10 months on this particular anitbiotic,my body has become immune to it. I went in to see her and she suggested that I take bleach baths. That's how I came across this website. I will give it a try I will also try excersising more and see if that helps. Maybe with the stress or the bacteria, we'll see. Also, try Oregano Oil. It has micro-antibiotics that work on the outbreaks and everything from mosquito bites to paper cuts. I take one drop by mouth and rub on any break in the skin. Thank you all for your personal stories and experiences. I know it's hard to voice your experiences with all the closed minded people out there thinking that your going to infect the world.As long as you sanitize your hands, body, toilet seat, phone, sheets, razor, etc. chances of you spreading this to others close to you are extremely slim.

Re: 6 months of MRSA
Reply #58 by josie
Posted: August 17, 2009 at 10:02
I have just been diagnosed as having an mrsa positive result in my bladder,most probably from having a suprapubic catheter,The Forum gives interesting reading and advice, none on the long term effect on bladder infections sadly,
This statement gives me concern
"I agree don't pick your nose, but your statement about what is found under an NHS hospital bed is a rash one. "
I have had enough inpatient stays with the catheter to see burst drainage bags due to shortages of staff or downright lazy staff,I have had a leaking bag wetting the bed and staff changing the bottom sheet and trying to leave the top sheet (which had dried during the wait for sheet change)That had me being accused of trouble making,I call it being assertive, my drainage bag bursting and spraying a jet of urine for hours in the night,that may be an error, staff washing the floor and not properly cleaning the bed frame gave me grave cause for concern
The family car is more intensely cleaned than some ward floors I have seen.So yes be concerned very concerned
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