MRSA Superbug Forum

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number of replies (615) - Page 13 of 31
Re: after effects of MRSA on the body
Reply #240 by Linda
Posted: September 12, 2008 at 15:21
Yes, he was on anti biotics initially for a chest infection that they then said was pneumonia, which they then decided after the MRI that it was lung cancer - now you can see why i am sceptical about anything they told me.
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Re: after effects of MRSA on the body
Reply #241 by Nancy R
Posted: September 12, 2008 at 23:56
I totally disagree with your assessment as to CA MRSA being worse than HA MRSA. I don't know of too many folks that died from CA MRSA, but I can list at least 20 who died from HA MRSA. CA MRSA is a pain, leaves awful scars, is difficult to treat, but rarely fatal. It ravages the body with awful scars and plenty of pain, for sure, but rarely kills.
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Re: after effects of MRSA on the body
Reply #242 by Ruth Wollacott
Posted: September 18, 2008 at 23:18
Thanks for your good wishes Andy, I hope you feel better soon.
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Re: after effects of MRSA on the body
Reply #243 by Jory
Posted: October 2, 2008 at 22:42
I'm posting on several threads because I'm desperate. It's been 7 years since HA MRSA from surgery at base of spine. Severeal more surgeries trying to contain it, then PIC w/ Vanco and oral CIPRO for months - until complete renal failure. Too many health issues now to even list, but before giving up spouse suggested searching internet to see if others having problems after MRSA - and here I am. Doctors have basically black balled me in this area, I'm considered some type of loon. Besides spouse I have no reason to go on, and feel like a burdeon to spouse. I'm NOT looking for sympathy, need hope. Any communication or help wb greatly appreciated.

thanks,
jory@personakey.com
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Re: after effects of MRSA on the body
Reply #244 by Alison
Posted: October 8, 2008 at 06:34
I've had about 6 MRSA infections within the last 9 months. I too have experienced
fatigue, headaches, just feeling generally unwell & run-down.

In the last month (when I've a new infection every week) I've been running a constant
fever ranging anywhere from 99 to 101 degrees. Has anyone else experienced a
consistent low-grade fever?

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Re: after effects of MRSA on the body
Reply #245 by Dee
Posted: November 5, 2008 at 20:22
My husband has just being diagnoised with MRSA. So many unaswered questions. What to do next?
He had his gall bladder removed about a year ago, and has never had any sort of syptoms as mentioned in pervious postings by other people.
About 2weeks ago he developed a boil, which doctors did a swab test ant discovered it had MSRA. Does this mean i have it, as it can be passed on from skin to skin contact, does it mean our 3 children have it. Like i said, what to do next. He has been given all the medication, antibiotic, nasal cream and anti-bacterial powder.

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Re: after effects of MRSA on the body
Reply #246 by Dee
Posted: November 5, 2008 at 20:24
My husband has just being diagnoised with MRSA. So many unaswered questions. What to do next?
He had his gall bladder removed about a year ago, and has never had any sort of syptoms as mentioned in pervious postings by other people.
About 2weeks ago he developed a boil, which doctors did a swab test ant discovered it had MSRA. Does this mean i have it, as it can be passed on from skin to skin contact, does it mean our 3 children have it. Like i said, what to do next. He has been given all the medication, antibiotic, nasal cream and anti-bacterial powder.

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Re: after effects of MRSA on the body
Reply #247 by carson judkins
Posted: November 23, 2008 at 16:34
it has been over a year since my last reply..
that was when the condition was at its worst.
I went through a lot of pain then but I am a lot better now.
I have no symptoms and the infection has been gone.
I have no trouble running anymore at all.
My MRSA has been treated and practically cured.
I hope this helps others going through it all,
It's tough, I know.

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Re: after effects of MRSA on the body
Reply #248 by Marla
Posted: December 8, 2008 at 03:02
I was operated on this past Nov. 19th to replace two fractured disks in my cervical spine. Two days after being released from the hospital I developed a fever and drainage (pus) from my surgical incisions. My neuro-surgeon immediately admitted me back into the hospital had me prepped for OR and wound debridement. Next thing I know I have an infectious disease doc treating me for HA-MRSA and sepsis. It is now Dec. 7 (I was discharged Dec. 1) and I am home with a PICC line and on twice daily IV Therapy on Vancomicin. I am PETRIFIED, all of my joints and muscles hurt I run temps all day and worse at night. I am a single mom of three, my oldest son has no spleen, nobody told me if I was putting my family at risk. Now how long the vanco treatment would be. I am in pain all of the time, not to mention the pain just from surgery alone. Any help or east coast specialists?
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Re: after effects of MRSA on the body
Reply #249 by Nancy R
Posted: December 9, 2008 at 15:04
Hi:

I've been where you are and believe me, I know your fear. It's not imagined. It's real. I live in Maryland. I assume that you live in the States. I was saved by two of the world's best orthopedic surgeons that practice out of Sinai Hospital in Baltimore County. They specialize in hips and knees so I'm not sure if they would do spinal work, but perhaps they can hook you up.

Their names are Dr. Michael Mont and Dr. Ronald Delanois. I picked up HA MRSA in another Maryland hospital and wound up in their care because my surgeon could not "fix" me. I owe my life to these wonderful doctors. I especially like Dr. Delanois. He's a young doctor with a no nonsense attitude and really got me motivated when I was afraid and angry with the whole medical profession.

Here is contact information for them:

Center for Joint Preservaton and Reconstruction
Sinai Hospital of Baltimore
2401 West Belvedere Avenue
Baltimore, MD 21215

410 601 8500
410 601 5645

I hope they can help you. God bless you. Since I was so allergic to Vancomycin I couldn't use it at all, I'm not sure how long you'll be on IV therapy. I was also on a PICC line and ultimately what worked for me was Daptomycin (Cubicin) and oral Bactrin. Zyvox was first tried and really tore up my immune system.

I know you are frightened for your son that has no spleen. I would absolutely consult your Infectious Disease doctor and ask for protocols in keeping him safe. If you don't have an ID, you NEED one. I can recommend 2: Dr. Berg at Sinai or Dr. Morris Shochet at Baltimore Washington Medical Center in Glen Burnie, MD.

Here is the contact infomation for Dr. Shochet

Balto. Washington Med Ctr
300 Hospital Drive
Suite 227
Glen Burnie, MD 21060

410 553 8085

Both doctors are wonderful, compassionate and good communicators. I can't recommend Balt/Wash. Med Ctr, for that's where I contracted MRSA in the first place, but for in home IV care, Dr. Shochet is first rate.

Hope all goes well. And for the record, I have been MRSA free since I changed hospitals and doctors. The team at Sinai are just wonderful.

hugs,

Nancy
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Re: after effects of MRSA on the body
Reply #250 by Greg
Posted: December 13, 2008 at 20:29
I was treated for MRSA and I feel tired all the time.I have a hole in my back from the first time I got it.The second time it was on my arm and I have a black place on my arm.Then I got it in my elbow (in the joint)it maked my whole arm swell and I thought I would loss my arm.I had a 103 fever and nightsweats.I could not think striaght and I was very mean to my wife.The Dr. put me in the hospital for some time.before I got out,They put a picc line in my arm.For 7 weeks I had my meds though my picc line.I'm done with my meds,but I'm so tired and I get headachs alot every day.ANY ONE OUT THERE CAN TELL ME MORE ABOUT MRSA?ALSO WILL I HAVE THIS UNTIL I DIE?
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Re: after effects of MRSA on the body
Reply #251 by Nancy R
Posted: December 14, 2008
Greg:

There are a number of reasons for your fatigue. If you are taking any pain meds, such as Percocet, that will make you feel tired all of the time. Also, its likely that you immune system is compromised. Your symptoms were very much like mine when I had my hip infection.

It took me a year to ultimately get over MRSA. Mine was HA MRSA picked up during hip replacement surgery. I almost died twice. I know how bad it can be. I had 3 PICC lines installed and had antibiotics run for months. I know what you went through.

If you read the post above yours, I explain where I went to get help. I have had no recurrence since August, 2007 and have had a knee replaced this past summer. I would imagine if I still harbored and infection,it surely would have recurred during that surgical healing period.

The key, I believe, is twofold: getting the correct antibiotic for the proper length of time is certainly very important. However, no antibiotic can work unless you can get your immune system functioning. I did that by combining eastern and western medicine. I added lots of dark green leafy veggies to my diet, good protein, 5000 mg of vitamin C a day, probiotics to replace the good bacteria that needs to live in your gut to process foods properly, and controlled the side effects of the antibiotic therapy. I had a devil of a time with thrush. It made everything taste awful and Nystatin did not kill it. I ultimately used an herbal remedy that was systemic (Oreganol) and that took care of the thrust and an internal yeast infection.

Also, get outside and get some sun. Vitamin D, for example, needs sunlight to absorb properly. So, even if its only for a little while, make it a point to get dressed and go out.

It is essential to have good labwork to be certain that the antibiotics are working properly. I learned that the hard way. When I was on Zyvox, the white counts came down, the sed rate normalized and I thought I was cured. However, within a month, it was back with a vengence. Ultimately, the combination of IV Cubicin (Daptomycin) and oral Bactrim killed the bacteria. That and having the dirty prosthetic hip removed.

It is a process that takes a long time. I still lack the energy I had the year before, but I'm doing most of the things that I did before my illness. I still cannot walk far, stairs are very difficult, and I tire easily. However, I still manage to clean (8) 6 foot parrot cages, take care of my home, run a toy business and cook and clean up after my family.

Personally, in my opinion, MRSA ages you about 10 years. That is just my humble opinion, but that's how I feel. My joints ache and I do sometimes have trouble regulating my normal body temperature. But, I'm alive and have my life back to do whatever I choose.

For the record, I'm 59 and had osteoarthritis before this happened. That is why I was having my hip replaced in the first place. I'm no stranger to pain. Good luck.
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Re: after effects of MRSA on the body
Reply #252 by Greg
Posted: December 14, 2008 at 03:23
Nacny,Thanks for the info.I know that my immune system is still low.My white bloods cell count was very high for years and the Drs wondered WHY?.Now I know it must been MRSA,that caused my white blood cells to be high.My immune system was alway been low even when I was a child.I've been in and out of the hospital for most of my life.They told me I have auto immune disease.That's where your body fights itself.Nancy,I had MRSA in my bone (in my joint of my elbow)I'm weak and my elbow still hurts.Even if I bump it just a little(HO what pain)I did take Vancomycin for 7 weeks.The Dr hopes it got it all.I hope so to because I was take 1500mg Vancomycin though my picc line.
My Uncle Has MRSA in the lungs,He is in the nursing home.I guess it's runs in the family too,because my 2 years old has MRSA on her leg :(
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Re: after effects of MRSA on the body
Reply #253 by Nancy R
Posted: December 14, 2008 at 17:15
Greg:

Frankly, MRSA is RAMPANT in nursing homes. That is where it really got to the strength it is today.

Should you have recurrence, please suggest those meds that were used on me. As I stated, Vancomycin would kill me. I'm extremely allergic to it and have been for 15 years. When they were dripping Zyvox, I was never more sick in my life. I can remember pulling the tubing to do an exchange and some of the meds dripped on my skin. It burned and left a welt. And, I had been dripping this stuff for over a month! You have no idea how caustic some of this stuff is.

I really think your diet can make all of the difference in the world. However, if food is tasting awful, again you may have something as simple as thrush. It would be likely, in fact, for it is an opportunistic fungus that loves to move in when it can.

I can remember simple iced tea making me want to vomit. And, that is something I love. Once the thrush was controlled, food tasted normal and I could eat again. I lost 32 pounds in less than 4 months. I am happy to say that is no longer a problem (LOL).

I am very concerned about the continued pain in your elbow. I really don't think that is normal. However, I'm only a MRSA survivor and not a doctor. Have you ever had a White Cell bone scan? That would probably speak volumes.

That is done by drawing blood, irradiating the blood and adding whatever else they do to it and then they re-inject the blood. The white cells will then go immediately to wherever infection still remains, like bird dogs.I think you then go in for a CAT scan and they will see little white flecks where the irradiated cells congregate.

I don't know where you are located so I can only recommend my doctors and the hospital that cured me.

And, I don't think it "runs in the family". I think your 2 year old simply picked up the infection from you. Don't beat yourself up, you couldn't do a thing about it. It is opportunistic. Little kids fall and scrape themselves all day long.

Stay proactive. Don't just assume that something is ok. Your body is speaking to you. Listen to it. You will know before any doctor if something isn't right.

Nancy
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Re: after effects of MRSA on the body
Reply #254 by cheryl
Posted: December 17, 2008 at 05:37
my daughter recently had mrsa.(2 mths ago) ever since then she has had the flu twice numerosus colds and punomonia. Is this normal or should i have some blood test done to make sure all is ok?
Thanks for the input
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Re: after effects of MRSA on the body
Reply #255 by Nancy R
Posted: December 18, 2008 at 23:07
Cheryl:

I am not a doctor, so take this with a grain of salt. It sounds to me to be mighty suspicious for flu but common for MRSA. Also, you can get pneumonia with MRSA and that can be VERY contagious. I do think bloodwork is in order. JMHO.
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Re: after effects of MRSA on the body
Reply #256 by KIMBERLY BELL
Posted: December 20, 2008 at 08:28
I AM A NURSE, YOU WILL NEVER BE FREE OF MRSA, IT WILL LAY DORMAT UNTIL YOUR IMMUNE SYSTEMS GETS LOW-COLD SEASONS ARE THE WORSE-KEEP YOUR IMMUNE SYSTEM HEALTHY. GET PLENTY OF REST. MAKE SURE YOU USE GOOD HAND WASHING, YOU NEED TO GET A PRESCRIPTION OF MUPRIACIN OINTMENT TO USE AROUND YOUR FINGERNAILS AND UP IN YOUR NOSE. THIS MUST BE DONE 2-3 MONTHS FOR THE REST OF YOUR LIFE. MRSA LIVES IN YOUR NOSE-THERE IS AIR-BOURNE MRSA AND UNDER YOUR FINGERNAILS-CONTACT MRSA. NO FALSE NAILS THESE HARBOR ALOT OF MICROORGANISM. MAKE SURE YOU WASH YOUR HANDS BEFORE AND AFTER USING THE BATHROOM-2 MINUTE HANDWASHING, BEFORE YOU EAT, KEEP A BOTTLE OF HAND SANITIZER WITH YOU AT ALL TIMES-AND USE IT. I HOPE THIS IS HELPFUL!
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Re: after effects of MRSA on the body
Reply #257 by Karin
Posted: December 26, 2008 at 22:11
I've had MRSA twice now in 8 months. I am always tired and lack an appetite. I've read so many different things and don't know if it's a norm or not and if I can expect to feel better any time soon. This is my third MRSA outbreak total and want to know how I can get healthy again.
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Re: after effects of MRSA on the body
Reply #258 by linda mccafferty
Posted: December 26, 2008 at 22:36
Are you in the uk Karin ?
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Re: after effects of MRSA on the body
Reply #259 by MRSA x 9 years
Posted: January 9, 2009 at 03:36
I have had MRSA in an abdominal wound for NINE years. I don't think anyone but the patient can explain how they feel after. Mine is still within the abdomen after a 30 cm x 10.9 wound finally closed 6 months post op. I went in for a hysterectomy, came out with all my repro organs (guess the doc with three board certifications could not get them out?) and MRSA, Pseudomonous (sp) and Klepsiella along with a few other bacterias.

I've been to the Mayo Clinc, they can't help me. If they go back in surgically I will probably wind up with a colostomy.

I live with pain and arthritis that did not exist prior, in ever joint of my body. Spurring, spondylosis, stenosis etc.

A picc line of Vanco several years later to try to clear up the reoccurence from a small drainage hole at the edge of the wound. I had 2 years of no drainage. Poof it was back. ID doc wants to put me on a picc line again. I'm scared!! If the MRSA gets into that picc line in anyway the patient can get endocarditis and die.

So why is this allowed to continue? Why can't an MRSA patient sue? Lawyers won't touch the cases. I am thinking of going public with this so patients can learn about the risks of entering a hospital for elective surgery. 20/20 hindsight is wonderful but doesn't help.

To all with MRSA I wish you the best of health, to the families that care about their family member with it, you're wonderful. To all patients, BE YOUR OWN ADVOCATE and make sure you have family or friend watching out for you in any hospital setting.

Realize there are more deaths from MRSA than HIV yet is there enough research going into this problem? Just sticking Purell on the wall doesn't cut. it.

Best of health to all.

I'm just another MRSA vicitim, still alive but who knows what tomorrow will bring and yes I'm angry to this day.
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