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mrsa in blood stream
Started by teri
Posted: November 19, 2005 at 12:40
diagnosed this wednesday, my mum's condition has been up and down each day- dr's say she,s not responding well to the antibiotic. Where can I find detailed info on prognosis, as the roller coaster is difficult to relate to my sister living in canada.
Thanks
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Re: mrsa in blood stream
Reply #1 by Bev
Posted: November 19, 2005 at 12:48
teri i am really sorry to hear about your mothers condition you really need to get the consultant in charge of your mothers condition to sit down with you and explain fully what is going on with your mum ~ be firm but do not let them fob you off
take a look at website www.mrsaactionuk.com it has lots of information that might helo you
best wishes
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Reply #2 by kim
Posted: July 21, 2006 at 23:17
drs have just informed us that my father has mrsa in his blood streem what does this mean and how dangerous is this
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Reply #3 by Bev Hurst
Posted: July 22, 2006 at 08:58
dear kim
i am really sorry to hear about your father as i said to teri please try and speak to the consultant in charge of your father and try to get some information from them. please take a look at website www.mrsaactionuk.com it might give you some useful information
what drugs have they got your father on ?
best wishes
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Reply #4 by Cindi
Posted: July 23, 2006 at 09:37
I am sorry to hear that so many elderly are getting this MRSA. My mother was fine one minute and then really sick the next. I took her to the emergency room where they said she had staph phnemonia and blood infection 2 weeks later she passed, she turned 58 on Jan 18,2006....I miss her soooo very much. This is very serious.
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Reply #5 by yvonne
Posted: July 31, 2006 at 17:11
hi teri
i am sorry to hear about your father having MRSA in his blood stream.
My youngest daughter has also got MRSA in her blood stream she got it through a blood transfusion when she was 4 weeks old in baby care as she was born early and i was told that she will always have MRSA because it was in her blood and there are nothing that will get rid of it and she will be starting school after the holidays.
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Reply #6 by Ruth Wollacott
Posted: July 31, 2006 at 17:42
I still do not understand the idea that once MRSA has been in the bloodstream you are always infected. MRSA bloodstream infection is extremely serious and I do not believe you could survive for more than a few days with MRSA bloodstream infection. As is evident, most people who have MRSA bloodstream infection die, even after they are given strong anti-MRSA drugs. I truly believe that had James not been so fit and healthy that he would have died when he contracted MRSA. As it was, he was extremely unwell for several months and has been tested for MRSA on every occasion since when he has had elective surgery. Prior to the last surgery, he was given prophylactic teicoplanin as an added safeguard. On each occasion the surgery has gone ahead as planned, subsequent to the MRSA screen being returned negative. He has been assured that should the MRSA test prove positive, the surgery will be postponed until such time as the test returns negative. If, however, it is the case that once you have had MRSA bloodstream infection then you always have MRSA, my son would never have undergone any further surgery, nor would any test have been performed. The fact that he has been tested MRSA negative at least five times since he almost died from MRSA bloodstream infection three years ago suggests that it is not the case of once infected, always infected.

I am not a doctor and have no medical training and would welcome informed clarification.
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Reply #7 by Lisa from SC.
Posted: August 2, 2006 at 04:58
Hi,
Ruth your son's story is so much like my son's story. My son's MRSA was in his blood, bones and joint.He has had six surgeries to date, five of them is to fix the damage that the infection has caused, we came very close to loosing him last year. We have been waiting now for the seventh surgery, it's going to be the big one, major reconstuction and a 10 to 12 month recovery.We are all so nervous about it and hope that all will go well without any more complications, the kid just can't afford any more medical error in his leg, it's been a major battle to save him from loosing it. We have had my son repeatly recheecked for MRSA and so far all has been negative and his over-all health has greatly improved, he has been left with a great amount of disabilites, as he walks with the aid of a cane, or uses his wheel chair and has been left with a very unstable knee but we are hoping that will improve after the next surgery. My son's leg will never be the same as before he was infected with MRSA and other bacterias because when he first layed on that surgical table for a simple out paitent proceder something was not cleaned (hands or equiptment) We were told that extra precautions would be taken before any surgery he has to have and I am truley hoping that once infected does not mean always infected and so far the medical test now done on my son prove that that is not true, it's negative. Like you I belive the reason why my son survived all of this was because he was a healthy 15 year old boy when he entered the hospital ,and was then expossed to this horrible infection due to improper hand washing and was strong enough to beat this.
I have NO medical traing either and am not a doctor, just an angery Mother that has watched my son live thru Hell in the last 16 months! I too would love to hear anyones oppions and also welcome any suggestions.
Best wishs to all,
Lisa Toolen
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Reply #8 by Ruth Wollacott
Posted: August 2, 2006 at 09:34
Lisa, you and I are fighting this from a very different perspective to the majority of posters. Most people are grieving for a (ususally elderly) relative who has died with MRSA as a complicating factor. Our sons were fit and healthy teenagers who had no medical condition and were merely unfortunate enough to end up in hospital for orthopaedic work, in fact, for the very reason that they were fit and healthy teenagers. If neither of them was interested in playing sport, injuries/repairs to the knee to give them the best chance of playing sport would not have been an issue. If we had given them some more junk food and told them to watch a video instead, rather than go out to play with their friends, MRSA would not have been an issue. This is a very different scenario to an old and ill person succumbing to MRSA on the back of another medical condition.

However, re this thread, I find it difficult to believe that once you have been infected with MRSA you always have it. As we both know, once you have been INFECTED with MRSA you are always AFFECTED by it. Our sons have a lifelong disability as a result of having contracted MRSA but both have always tested as negative prior to surgery.

I think that the medical profession are so divided on the causes, spread, longterm effect and some are just plain ignorant on the whole subject. It would therefore be quite unwise to set much store on any information you are given about MRSA until you have checked it thoroughly for yourself. I asked the question about reinfection and was told (i) chances were the same or (ii) don't know.
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Reply #9 by Susan
Posted: August 2, 2006 at 11:16
Ruth, I _so_ agree with you about the difference in people infected with MRSA. I was a healthy 50 year old when I went in for simple spinal surgery. That was back in January 06 and I'm still fighting the effects of the MRSA introduced into the wound.I had so many strong antibiotics that my hair fell out badly, skin tone, muscle tone, face and hair have aged a good 5 years in the last few months but I survived - just. All confidence gone, they're talking about me going back to work part time in September.
I don't think the cause of MRSA is truly known yet. I was swabbed for MRSA before I went for surgery (in a private hospital, by the way) and was clear.
I am not taking any medication now but have blood tests every couple of weeks to make sure the infection has gone but every time I get the slightest problem, such as a sore throat, I panic incase its back. The Dr says it will be a year before they're cofident its gone.
I have also experienced the 'wall of silence' from the hospital. MRSA is never mentioned just 'the infection'. I think its to keep their statistics looking good.

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Reply #10 by Ruth Wollacott
Posted: August 2, 2006 at 13:36
Indeed, James is so frightened of reinfection, he showers two or three times a day, with a change of towel and clothes each time. His brush with MRSA was three years ago and he has been unable to work since. His future employment prospects are poor. He has applied to the bank for a loan to buy an ongoing, successful business from someone retiring; the bank are cautious to help as he has no experience of running a business - he was 19 when he contracted MRSA - and insufficient income. Obviously, as he has been unable to work for the last three years, his only income is DSS benefit, this is set to continue. It is difficult to imagine an employer sympathetic enough to take on a person who cannot kneel, climb, sit in a chair for more than 30 minutes, needs to sit with his leg extended in inflatable blood circulation aid and becomes very tired after a few hours' concentration or physical effort and needs time off for surgery and recovery. He is now coming up for 23; not much of a future, is it?

I would say that in May 2003, James was probably one of the fittest and healthiest people I knew. By July 2003 he was expected to die and it was really not until about the end of 2005 that he began to recover his strength. However, he tires very easily and his knee gives him constant pain, which is tiring in itself. He is very limited in his mobility and cannot walk more than 100 yards or so without resting. He refuses to use a walking aid as he does not see himself as disabled. He is facing further surgery, this time to his ankle, which, of course, causes a great deal of stress with the fear of reinfection and the attendant recovery period. However, our local PCT, who try at every opportunity to discontinue funding his physiotherapy and 'out of area' surgery has suggested he have ankle brace made and go to see the Disability Officer at the Jobcentre to look for a job he could do.

We are lucky in that our MP is actively working on our behalf and intervenes with the PCT to ensure that they understand that James was left damaged whilst in the care of the NHS and it therefore is incumbent on the NHS to at least attempt to ensure his rehabilitation is the best for him. This, unfortunately, is not the PCT's position, they are guided merely by the chequebook.

I have been accused of campaigning on MRSA on a 'out for myself' basis which is certainly not the case. However, what must be obvious to anyone is that given the scenario I have painted above, the timescale for action is much shorter than campaigning for tightening up in writing death certificates. This also reinforces the government position that MRSA is only a problem for old, already ill people. It must also be obvious that a walking, talking and very damaged handsome young man is an asset to the campaign. If it can be demonstrated that MRSA does, in fact, strike anyone regardless of their age or medical condition, it strengthens the case for improvement in hospital as it cannot be dismissed as 'just one of those things' when healthy young people are disabled by state inefficiency and are then reliant on state benefit. If a living victim with many years ahead of him/her can bring a successful compensation claim on the basis that the future 50 years will be a difficult struggle entirely for the reason of state inefficiency, it should spur those in charge to make efforts to ensure that no-one else becomes infected, for fear, if of nothing else, of the huge payout which will be attendant for a long and blighted future. It is difficult to make the same case for an old person with many other medical problems, although any positive gain for a living victim has to flow back to rectify the position of those who have died with at least an admission of accountability, liability and an apology. Compensation to a dead person is of little value and it is a shame that those campaigning are unable to recognise that a different approach to a problem does not constitute selfishness whereas a concerted approach could yield results for everyone.
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Reply #11 by Bev Hurst
Posted: August 2, 2006 at 14:17
you are quite right Healthcare Associated Infections have no respect for age or gender ~ Lucy Disney 44yrs ~ Colin Law 32yrs ~ Daniel Youd 16yrs ~ Luke Day newborn ~ baby shaw 6 days ~ Wigan School girl 10 yrs ~ Simon Tee rugby player 20's ~ Moya Stevenson 45 ~ young mothers age ranges from 18 - 27 the list is endless the age range is endless the outcome of contracting these infections are endless whether a survivor or to the relatives of the victim

you are also quite right the compensation to the dead person has very little value and will not bring the person back BUT whether a survivor or sadly a relative of the deceased the compensation will help because it would bring accountability and the recognisation that someone was at fault and that the life of the person survivor or deceased was more than a statistic on a piece of paper

accountability, openess and tranparancy of immediate information, strict adherence to infection control by all parties, correctly written death certificates and an admittance and owning of a problem because without ownership you cannot begin to sort the root cause out
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Reply #12 by Ruth Wollacott
Posted: August 2, 2006 at 17:20
I cannot see that ownership is in question. The NHS/government own/manage the NHS and therefore the ownership and accountability is, without doubt, with the NHS/government. An unwillingness to accept this position does not alter the truth. The NHS/government are very happy for the question of ownership and writing up of death certificates to be debated ad nauseum because that all delays any real chance of a payout. Whilst they are debating ownership, the three year chance to seek compensation runs out and anyone seeking real practical assistance to cope with a disability caused by state inefficiency does what? I need help.
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Reply #13 by Andrew
Posted: August 2, 2006 at 20:08
'debated ad nauseum' rather implies that the Shipman Enquiry was of no importance because these people were elderley and dead
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Reply #14 by Ruth Wollacott
Posted: August 2, 2006 at 20:36
Does it? Why? The issue is surely the same. I thought was the actual treatment of the patient which the Shipman Enquiry investigated, rather than whether the death certificate was properly written up. If there had been nothing untoward in the medical care and treatment of the patient, there would be no problem in writing up a correct death certificate. That applies with MRSA infection. I don't have a death certificate to correct and therefore, obviously, I am fighting from a different perspective.
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Reply #15 by Sarah
Posted: September 29, 2011 at 05:21
My daughter was 7 mos old when we found out she had MRSA. She was hospitalized for 4 or 5 days. We found out that my sister, who works for a home health agency had come in contact with a nurse who had taken care of a patient with MRSA, and therefore it got passed to my daughter through contact. Now my little girl is almost 6 years old and we found out recently that my sister in law has MRSA in her bloodstream.

My sis is currently in the hospital on antibiotics and doing ok. I worry though because my daughter has been around her and stayed at her house. So I called her dr and got told that technically everyone carries MRSA. I asked how that was possible and she could not give me a crediable answer.

So as of right now I am worry and watching for any signs of MRSA returning and making my daughter sick again.
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