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Re-occuring MRSA infection in Sinuses
Started by Jeanne
Posted: August 13, 2005 at 02:33
In Sept. 2003 I had nasal surgery to "clear" out the sinuses, this was due to re-occuring sinus infections. After the surgery site (cut above my tooth and into my sinuses) did not heal, I was started on week after week of antibiotics. At that time the culture was Serratia Marcences, which eventually cultured MRSA. I left the ENT that did the surgery, have gone to 2 other ENT Doctors with both of them telling me I have to have more sinus surgery. Now - anyone that has this problem-can you tell me (sorry- but this is gonna sound gross!!) my goo that comes out now is a really nasty sticky greenish, sometimes lime green, smells and tastes bad and also stings my nose to the point of my eyes watering...almost like it is toxic!! I told my Infectious Disease Dr. and she was pretty upset that the other doctors have not cultured it yet. So, I go on Monday (8-15-05) to get my nose cultured again...I was wondering if anyone else has had this happen to them..Thanks!! Jeanne
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Re: Re-occuring MRSA infection in Sinuses
Reply #1 by nick lowton
Posted: August 13, 2005 at 13:12
hi there i was told a month ago i have mrsa in my nose,which has obviously upset me alot.the reason i`m replying is that i have sinus problems and have mucus from my left sinus which is a clear jelly and tastes like poison,and affects the palate at the back of my mouth.i wonder if i also have mrsa in my sinus also.hope your getting some joy and treatment and hope you are making progress.would love to hear how you are doing as i`m not getting great help at the moment,yours sincerely nick lowton
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Re: Re-occuring MRSA infection in Sinuses
Reply #2 by Denise
Posted: August 13, 2005 at 16:21
Jeanne - My children had MRSA infections in their ears and they had the same type of drainage you describe. It was thick, green, mixed with blood and smelled terrible. Sometimes it was so thick that they could barely hear. Good luck on Monday.


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Re: Re-occuring MRSA infection in Sinuses
Reply #3 by Jeanne
Posted: August 14, 2005 at 01:47
Thanks for you both responding, Nick-I would have the doctor do a culture of your sinuses. It isn't fun, but at least you will know..I know that mine isn't nearly as bad as some of the people I have read in here, but those pic lines and main lines for the IV antibiotics are really bad...I wish you luck Nick.

Denise, I am so sorry to hear of your children - I am glad you told me that, my Infectious Disease Doctor here in Maryland (USA) said that MRSA isn't green...well I guess she doesn't know everything...I have had nose bleeds and clots mised in with the green goo. It is not nice, no matter what. I hope your children are doing well.
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Re: Re-occuring MRSA infection in Sinuses
Reply #4 by Denise
Posted: August 14, 2005 at 03:35
Jeanne - Thanks. My children are infection free now. They were successfully treated with Zyvox. Believe it or not, my younger daughter's name is Jeanne, too! Are you near Baltimore? Tony & Barbara Field, from the MRSA Support Group UK (Tony is the Chairperson and Founder) will be travelling to the USA to help raise awareness about MRSA in our country. My stepson and his friend and colleague will be travelling with them to create a documentary and a journalistic chronicle of their efforts. I am in New York, but they will be travelling to Maryland for part of their journey.
When my children had the infections, I learned that a lot of doctors don't know enough about this. That is why I've joined in the efforts to educate people about what is happening. It was so frightening to have my pediatrician say he'd never had another patient with this type of infection. And then, we had two young children in one family! It was our pediatricians suggestion that I try to educate myself about this infection. Now I try to share what I have learned with others. We are trying to get a support group in the USA and Canada like they have in the UK. We have a website at www.handsofhopegroup.com if you want to take a look.
You are welcome to e-mail me at drej424@yahoo.com.
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Re: Re-occuring MRSA infection in Sinuses
Reply #5 by Jeanne
Posted: August 15, 2005 at 01:11
Denise - I will go take a look at the website!! I am very interested in knowing all I can about this. You see, I have MS, Crohn's Disease and Fibromyalgia also, but this staph really scares me. I am in contact with the other diseases and sometimes it is hard to tell which once has surfaced when I am not well. I am near Baltimore, takes me about 1/2 hr drive time. Will you let me know when Tony & Barbara will be in the area. Will they hold conferences? This is nasty stuff, I had a sorta bruise on my thumb and it turned in MRSA infection, had my thumb wrapped for 6-8 months and it turned into about a dime size sore. I am glad that your children are clear from the MRSA, it is so sad that children are hit with this and some of them hit hard. Thanks for your support!! I will let you know when my culture comes back - should probably take about a week, which they could rush it!! LOL!! Oh well, you have a great week and thanks again!! Jeanne ;)
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Re: Re-occuring MRSA infection in Sinuses
Reply #6 by Denise
Posted: August 15, 2005 at 16:11
Jeanne - There is technology available that can detect MRSA in 2 hours. The actual "normal" time to determine if an infection is MRSA is 48 hours. It takes about a week to know what antibiotics will be effective if your infection is MRSA. Your doctor could probably get a preliminary report by Wed. Good luck today!
Oh, and to answer your question, they are holding some conferences and we are trying to arrange a live international chat. There is a calendar of events on the www.handsofhopegroup.com website. It is very exciting and I have a lot of hope that Tony & Barbara's efforts will make a big difference in our country, just as they've done in their own.
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Re: Re-occuring MRSA infection in Sinuses
Reply #7 by Kay
Posted: August 17, 2005 at 02:10
Jeanne,
So sorry you are having these problems. I have had sinus surgery 4 times and still need another one. I am also from Maryland but now living in Nevada (1 year). I was told in January 2005 that I needed to have my sinuses opened but first should have my tonsils removed. At the time I was suffering with back problems and decided to get treatments for that problem first. I went to a treatment center 5 days a week for 6 weeks. I had 3 injections in my spine along with some IV therapy. By the time I received my last treatment I was sick with a respiratory infection (upper and lower). A sputum culture showed heavy growth of MRSA. I was told that MRSA is usually from a treatment facility. I had never heard of it until I was diagnosed. I have had the same green gook from my sinues that you described. It tastes terrible. My sinus problems started 11 years ago with a fungus infection that blocked the maxillary sinus. I had the second surgery 3 months later to remove what was missed the first time. I was cut above my teeth as you described. I believe the method of surgery is called the "Caldwell Luche". I am concerned that my sinuses are infected with MRSA. I have an appointment to see an Infectious Disease doctor on 8/23/2005. Hope it helps to know you are not alone with this problem. Hope you get some answers.
Sincerely,
Kay
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Re: Re-occuring MRSA infection in Sinuses
Reply #8 by Jeanne
Posted: August 20, 2005 at 02:20
Hi Kay!! Thank for writing, you really sound to be going through it!! I had my nose cultured on Monday and while I was at the Doctors with my husband today (8-19-05) the Doctor brought in my file also. The culture was not MRSA, I am thanking the dear lord for that!! I am being treated with Penicillin, and not a Pic Line-as per my Infectious Disease Dr was planning if it was MRSA. All the ENT's I go to want to do another surgery to clear the sinuses out again. The last one told me it could get so infected that it could go to my brain-now that is drastic!! When I had the surgery for the sinuses-my whole left side of my lip, above my teeth-my gums and cheek are still numb, Dr said that he must have hit a nerve. Well I wish you all the luck with your Infectious Disease Doctor, they are well worth it and mine is very prefessional and does not hold back on what she has to do to get the problem solved. Let me know how your appointment went when you can. Take care!!
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Re: Re-occuring MRSA infection in Sinuses
Reply #9 by Denise
Posted: August 20, 2005 at 03:50
Hi, Jeanne! That's great news!!! I hope you are feeling back to normal soon!

Kay - Good luck on your appointment on Tuesday. I hope you have the same results as Jeanne! At the website http://mrsaresources.com, there is a prayer chain you can add your name to if you'd like. You can also access it at http://handsofhopegroup.com/ on the Useful Links page.
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Re: Re-occuring MRSA infection in Sinuses
Reply #10 by Jeanne
Posted: August 20, 2005 at 22:59
Thanks Denise. I went to the prayer chain and added my name. I am so lucky to have found this site and I visit it everyday!! You see, I also have MS, Crohn's Disease and Fibromyalgia. So I can use all the prayers out there..as well as everyone else. God Bless you all and I keep you all in my prayers every night!!

Love,

Jeanne ;)
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Re: Re-occuring MRSA infection in Sinuses
Reply #11 by Kay
Posted: August 27, 2005 at 05:24
Hi Jeanne,
Thank God your nose culture was not MRSA!! I know you have to be so relieved. Jeanne it sounds like the sinus operation you had was like my second one. I was cut on the right side above the teeth. I was numb also, I didn't get all the feeling back but I got used to it and it didn't bother me. My right maxillary sinus was blocked so I was just so relieved from the pain. My story is not all bad news, that surgery was in 1994 and it did help me but now it is back full force. The doctor told me the same thing about the infection going to the brain. That is so frightening. My doctor in Maryland told me to irrigate the nose with a combination of 1 tsp. of salt & 1 tsp. baking soda mixed in a gallon of warm water. They told me to use a quart of this mixture every day to keep the sinuses cleared and healthy. Did they tell you that? I did that for a long time but it started getting bad when I was working in my basement getting ready to move to Nevada (16 months ago).
I have been on and off antibiotics since then. Sometimes irrigaing made my headache worse and sometimes it made it feel better. I was never sure if I was doing more harm than good. I was also a caregiver (my mother) for 5 years 24/7 so I was really stressed and didn't always have enough time to take care of myself. I am so sorry you have other health issues to deal with. This is difficult enough by itself. I am an insulin dependent diabetic. It is sometimes hard to know what disease we are dealing with. I hope you are felling better and I hope this info will help you in some way. Take care and let us know how you are doing. It is so nice to have this message board so we can support each other.
Jeanne, Denise, Nick
I went to the Infectious Disease doctor on Tuesday and then back on Thursday. Tues. the doctor asked me questions and said that I needed to have blood work done and also gave me a lab slip for another sputum culture. She said that she had looked at my last MRI of the sinuses and that they were very bad. She said I need surgery. I had a list of questions that she did not answer. She seemed to rush me out the door. I thought that I could get more info. when I went back Thurs after she had a chance to review everything and get the test results. The Inf.Dis. doctor said they were not able to get a culture because it was not sputum it was saliva. I had to ask about the blood work and she said it was OK. Again she was in a hurry and said that I needed to go on Zyvox and told me again that I needed surgery on the sinuses. She said that I would need to be on the Zyvox for 2-4 weeks and that I would need to go off some of my other medications before I start taking the Zyvox. My insurance company approved the pill form of the drug. I take a 600 mg. tablet 2 times a day for 2 weeks. The pharmacist told me that if I had to pay for the drug it would cost $4,200. He said that he has not yet seen anyone on that drug for a month. That really scares me!! Kay

Denise - Thanks so much for writing. Hope your children are continuing to do well. I am so glad the Zyvox helped them. Were they on that dosage and on it for that length of time. I know every circumstance is different. I have thought about your children so many times when I get scared and tell myself if they were able to cope with this then I certainly should be able to. I am 58 years old and have other health problems. My husband says that I am over reacting to this and that I shouldn't worry. Easier said than done!! Also, how do they culture the sinuses. I don't believe I have had that done. The first sputum culture that I had done was at the lab and they took some type of a sample from my nose. They didn't say that I had the MRSA in the nose they said it was in the throat and they believe it is coming form the sinuses. I have sinus headaches and a dry inflamed mouth. The ID doctor said the sore mouth was from antibiotics.I was on a sulfa drug for 4 weeks (On for 2 weeks, off 2, then on 2 again). Thanks so much, would appreciate input. Kay

Nick,
How are you doing? How you are getting the help you need and hope you are feeling better. Kay
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Re: Re-occuring MRSA infection in Sinuses
Reply #12 by Jeanne
Posted: August 28, 2005 at 02:18
Hi Kay!! Thanks for the information on the solution your doctors told you to use, I will try it..My ENT just told me to suck the water into my nose when I showered every day...I dont think so, but I have use this nasal solution bought at the hospital drug store. You asked how the dr takes a culture, they have this long Q-tip that is in a sealed sterile package and they put it up your nose as far as they can get it. My dr. did it to both of my noses and that is reinserted into the sterile vial and pagkaged up and sent to the Lab. My results came back in only 4-5 days. My doctor (new ENT) told me to have surgery also...I really dont want to go that route again. I will go as long at it will take beofre surgery again...My Mom lives with us, she is 75 yrs old and a diabetic. She has it controlled by a couple of different meds and what she eats, she does very well. I really hope everything goes well for you - Keep me posted and thanks!!


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Re: Re-occuring MRSA infection in Sinuses
Reply #13 by Denise
Posted: August 28, 2005 at 03:34
Hi, Kay - My girls were on Zyvox for 3 weeks and 5 weeks at a time. You need to have your platelet count monitored while you are on it, to make sure your body can tolerate it. There are some food precautions also, such as MSG, red wine, sauerkraut and things like that. I think I got the list of what to avoid from a google search. I'm glad that my girls' stories help to encourage you. One of the main points that Tony Field has been trying to make on his trip over here is that we all need to remember that this bug can be beat! Tony has been infection free for 5 years now, thank God. My children have been infection free for about 4 months now, thank God. I hope and pray for a world without MRSA someday. Until then, we'll keep fighting against it!
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Re: Re-occuring MRSA infection in Sinuses
Reply #14 by paula
Posted: May 27, 2009 at 15:45
Hi I was hoping someone could shed some light on a situation I'm having. I had sinus surgery done last Monday due to a blocked sphenoid sinus. He also fixed my deviated septum. I went to the ent yesterday to get my packing and splints removed and he said I had mrsa in my sinus. He stuck a long metal straw like thing all the way back to the very back sinus and put meds in it. I then had to keep my head tilted back for a half hour to let the meds work on the sinus. My question is how will I know its cleared up. I don't have to go back for 6 weeks. That sinus is apparently very close to the brain maybe Im paranoid but can the mrsa affect the brain? Any insight would be helpful. Thanks Paula
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Re: Re-occuring MRSA infection in Sinuses
Reply #15 by MRSA infecton in sinuses
Posted: August 27, 2009 at 03:22
Hello. I have Cystic Fibrosis, am 39, and just cultured out MRSA in my sinuses. My doctors and nurses will not really say much about it to me, just put me on oral Zyvox for 10 days. I need to be re-cultured, but have already had 8 sinus surgeries for other CF related things and feel I cannot endure anymore. If anyone out there has any advice at all for me it would be more than appreciated.
Thank you.
Sincerely,
Jenny Wilmerton
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Re: Re-occuring MRSA infection in Sinuses
Reply #16 by Gina
Posted: September 28, 2009 at 01:56
My husband had back surgery in 1986 and got Staph in the hip bone. Since he has gotten staph with every surgery he has had since, and he has had many surgery's. 2 1/2 yrs ago he had tubes put in his ears and here comes MRSA, he now has a sinus infection that is MRSA, his Doctor acts like this is no big deal, gave him bactrim,it dose nothing for the infection but makes him very nauseated, he has several health issues. He just finished his second round of bactrim. the doctor told us this last time that if he don't take all of the meds and get rid of this MRSA he could be in big trouble. But yet they choose to do nothing. How do we get someone to listen and do something for him????
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Re: Re-occuring MRSA infection in Sinuses
Reply #17 by Michael Meakin
Posted: October 7, 2009 at 18:40
I have been suffering from chronic sinusitis for more than a decade. I’m a Veteran of Iraq (1990-91) and on a VA Disability Pension, I must, therefore, get my care from them. I have had sinus surgeries and endless infections, numberless medications, and nothing has helped. After having recurrent MRSA abscesses all over my body since 2002, and being told by 3 emergency room doctors that MRSA could colonize the sinuses, my infectious disease doctor (who was always skeptical when I told him other doctors suggested MRSA in my sinuses) finally agreed to send my horrendous, stinking, human fetus-like, clumps of nasal puss to the lab…MRSA positive. This has been going on for YEARS, and ENT told me the problem in my sinuses was scar tissue from surgery, and that operating to remove it would only allow more scar tissue to grow so it would be pointless… What can I do to destroy this infection? I have been suffering from it for nearly 15 years, it seems, and no one was smart enough to find it. The drainage, the clogging, the headaches, earaches, eyeaches; I don’t trust them anymore; I may have even picked it up in their own operating room! I was on Vanco at home for two weeks in 2006, for MRSA in a finger amputation site. I had melanoma under my finger nail…something else the VA was unable to diagnose until they took one knuckle off after 2 years of an open, rotting nail bed. THEN, I had to go back and have another kuckle off the finger, THEN had MRSA in the amputation site so bad that my one remaining knuckle was the size of a plumb.
It seems to me no antibiotic has helped the sinuses, only the abscesses in other places.
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Re: Re-occuring MRSA infection in Sinuses
Reply #18 by jennifer
Posted: March 2, 2010 at 03:07
my son is 7 years old and has been suffering with sinus problems since he was 3.every culture they've ever done has been positive for MRSA. and yet nothing they give him seems to get rid of it. he has seen 2 ENTs and been to see infection control doctor once.he has had 4 sinus surgeries 1 to open nasal passage and 3 where they went in and scraped and flushed his sinuses. nothing has cured it. its only been maintained but not cured.he has another appointment with infection doctor in a week. he is currently on 2 different antibiotics 1 every 6 hours and the other is also used to treat TB. in the past he has had both of these before but not at the same time. i don't know what more they can do.
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Re: Re-occuring MRSA infection in Sinuses
Reply #19 by ladyk
Posted: March 3, 2010 at 23:56
jennifer -

I'm sorry your young son is suffering so. Please let us know where are you located?

ladyk


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